Sunday, June 21, 2020

Happy Father's Day Joe!

Lily made a gift for her daddy



We love ice cream and we love Joe!

Girl dad 💜

😂




Saturday, June 13, 2020

Boston Plans


We've decided to all go out to Boston together! Trying to coordinate and plan the back and forth and daycare was getting very complicated (and expensive), so we decided to keep the fam all together. It might be hardest for Rose to be away from home for a month, but at least we will all be together. We're planning on driving there, leaving on July 12th and staying overnight somewhere half way there. Google maps says it will take about 13 hours driving. We'll arrive July 13th, the same day Lily will be flown there. The hospital hospitality program set us up with a one bedroom apartment for the first 3 weeks at a very reduced rate. If she is there longer than 3 weeks, we will need to find another place to stay, but the person I was talking to seemed confident that they could help us with that. Thankfully, Joe's supervisor and boss are very understanding and he has had no problems taking the time off. My coworkers stepped up and are willing to cover all my shifts for that month. We are so grateful for amazing coworkers!! Please continue to pray for us as we plan for the trip and for Lily's homecoming (ahh! can't believe we're finally starting to talk about it!).

The hospital has a strict visitor policy right now that only allows parents to visit. That means one of us will stay in the apartment with Rose and Cora, while the other visits Lily during the day. The apartment is close to public transportation that runs right by the hospital. It also looks like there is a Trader Joe's and plenty of restaurants nearby the apartment. Hopefully, we can find some things to do with the other two girls during the day. There's still a lot to figure out, but it feels very reassuring now that we have a plan! Thank you for your continued love and support! We really do have an amazing community of family, friends, coworkers, church members and others supporting us in so many ways.


Had fun celebrating our nephew's birthday this week! 




Saturday, June 6, 2020

Surgery Date

 July 16 is the day! I heard from Boston Children's Hospital's admission coordinator yesterday. She said that Lily is booked for surgery on July 16 and that they will have her arrive the 12th or 13th. That's about all I know right now, but it is both tremendously exciting and scary at the same time knowing we actually have a date. We're not sure yet if Cora will be allowed in the hospital. Like here, their visitor policy says 2 adults are allowed, but no one under 18 including siblings. I've emailed a social worker out there to hopefully get some more information. She sent me a housing application form. They have housing for families close to the hospital and they have shuttles that go back and forth. We're hoping to get in there if they have the availability. If not, there are hospitality hosts (kind of like Air BNB) that we can apply for. Just wanted to give the update! Please pray for us as we try to figure out how we will handle her time out there. We haven't decided who will go out there and for how long. It's complicated with 2 other kids, jobs, COVID, etc.!