COVID19

Hey friends,

I know life is crazy for everyone right now. I wanted to give a quick update on the girls and how this craziness is affecting us.

Lily is doing very well. She's almost 7 lbs now! (6lbs 13 oz) We are waiting on her next gap study.  Hopefully it will happen sometime next week, but surgeries are on a case by case basis right now so they haven't given us a date yet. She's off her caffeine for over a week now which is great.  She also moved into a regular crib.

The hospital has been getting stricter and stricter on visiting policies.  We can still go see her, but only one of us (Joe or myself) are allowed in the hospital at a time. Cora can still come with me, but Rose is not allowed. We understand why,  but it makes it hard to go visit.  Plus, with the shelter in place order, I no longer bring Rose to daycare or have others come to our house to watch her. So I can only go visit if Joe is home. Right now,  Joe is still working. They are moving to 4 ten hour shifts next week.

Cora is growing too. 9lbs now! Both girls got their 2 month immunizations yesterday.  I brought Cora to her pediatrician's office,  but we had to go through the back door and they checked my temperature and Cora's temperature before we could go in. Cora is off all supplements now, so she's just breastfeeding like a full term baby. She's been having some tummy trouble that may be due to switching between different supplements and then going to just straight breastmilk,  or might be reflux. The doctor wants to wait a couple weeks before giving her some like prilosec for reflux.

Rose is doing well, just a little confused by the change in routines. She's happy to play outside more now that it's warming up a bit.

We appreciate your love, support and prayers.  Love you and stay healthy!

Not Much To Say

Not a whole lot to update on since the last one. Lily is almost 6.5 pounds now and doing well. Due to the Covid 19 situation, the hospital has enacted stricter visitation guidelines. No children under 12 are allowed to visit, period. They made an exception for babies that have twins there so at least Heidi can take Cora with her to see Lily, but now we'll need to get someone to watch Rose when she goes up there during the week. Also only two adults (instead of four) in the room at a time. Heidi and I have to get "screened" (do you have any symptoms, have you traveled, have you been around anyone that has traveled recently...bla bla bla) every time we go to the hospital. Just one more thing to add to the list of factors I guess.

Joe

Staying the course

Lily is 6lbs! Growing is her main goal right now,  so we are so glad she is putting on weight at a very good rate. She had another Echocardiogram today,  and everything is stable with her heart. We don't have to think about surgery to close the VSD until she becomes symptomatic.  Right now, her oxygen saturation levels are fantastic,  so no reason to expect surgery anytime soon.

Her next gap study will be at the end of this month.  We won't know the exact date until closer to then. Really not much to report,  which is good!

Cora is gaining weight and doing well too. She's over 7lbs! For the most part,  she's a trooper when I bring her with me to visit Lily. We have settled in to some routines which is nice.

Some days at home are definitely a struggle. It's hard to be patient with Rose when I'm sleep deprived. Please pray for Joe and I to have patience and energy!

We made it to church the last couple weeks.  It's so good to see friends and to be able to worship together.

I can't wait until Lily is home.  Love you all!

No tube for a minute!