Wednesday, March 11, 2020

Staying the course

Lily is 6lbs! Growing is her main goal right now,  so we are so glad she is putting on weight at a very good rate. She had another Echocardiogram today,  and everything is stable with her heart. We don't have to think about surgery to close the VSD until she becomes symptomatic.  Right now, her oxygen saturation levels are fantastic,  so no reason to expect surgery anytime soon.

Her next gap study will be at the end of this month.  We won't know the exact date until closer to then. Really not much to report,  which is good!

Cora is gaining weight and doing well too. She's over 7lbs! For the most part,  she's a trooper when I bring her with me to visit Lily. We have settled in to some routines which is nice.

Some days at home are definitely a struggle. It's hard to be patient with Rose when I'm sleep deprived. Please pray for Joe and I to have patience and energy!

We made it to church the last couple weeks.  It's so good to see friends and to be able to worship together.

I can't wait until Lily is home.  Love you all!





No tube for a minute!




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