Thank you for all your prayers and support yesterday! Lily had a good night last night and things are going well today too. She is still sedated and intubated, but they want her heart to rest right now. She had 3 chest tubes in after surgery, but those just came out, and they also took out her arterial line today. She's a little puffy from all the fluid, so she's getting some lasix to help her get rid of extra fluid. She still has a couple IVs, central line, external pacing wires, and foley catheter. She looks comfortable most of the time, but she does kick a little bit and briefly open her eyes. They did an echocardiogram this morning and that looked good. She also had a chest xray which showed some extra fluid, but that is expected I guess and should be improving. Her lab values all look fantastic. Summary: she's doing everything she should be. They are planning on extubating her tomorrow morning.
Just like her first heart surgery, it was really hard to see her like that, but we know that ultimately she will be better off now that the surgery is done. She'll be in the cardiac ICU for a few more days and then go back to NICU until it's time to go to Boston. Thanks again for all your love support!!
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJmfcFyRtGoI9OjKGcug_LlQyuZCVXIjG5mIpCP3rTumofRKzFV3CEaKSjx_DTgtwY6XJt6hwtXnT3euvsgOTaht2ULMnMEZ0vEbWTtU-WFXLy1-XEF0rssnQdw8SyCeWm5W9xjxSNOZOf/s320/00100sPORTRAIT_00100_BURST20200521110510051_COVER.jpg) |
Before surgery and a brief moment without her replogle |
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