Lily had her second increase in traction today. It's so crazy/weird to see. It's like nothing I've seen as a nurse before. The surgeon cuts little pieces of a feeding tube catheter (thin, flexible tube) and slides them under her sutures to increase traction until there's a pyramid of little tubes. He calls it reverse jenga, ha! He first pulls on the sutures a little bit to see how much give there is. He showed me her latest chest xray, and it showed her gap decreased by several millimeters. Yay! He said she'll probably be ready for the second surgery sometime next week.
Lily needed her ET tube or airway tube advanced a little again today. She didn't like that. Her heart rate and blood pressure jumped up and her oxygen saturation dropped for a minute. Soon her numbers were all back to normal, but I hope she doesn't need that done again! The nurse and respiratory therapist both said you can tell she's fiesty 😁 Thankfully nothing else eventful today. Physical therapy stopped by to do some range of motion, and massaging to help with her swelling. She also got another diuretic to decrease her swelling. Poor thing was still very puffy this morning. I can't wait until she's off the drugs and back to her normal self!
Tomorrow we're going to take a break from the hospital and do something fun with Cora and Rose 😊
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| Cora and Lily are 6 months today! |
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| We found Cheers! |
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| We went for a walk to Boston Public Garden |
It's been amazing to follow your story and see the strength Lily, and your whole family, has. Hope you enjoy some time out in Boston and make some good memories despite the stress you must be under. Love and prayers-Rachael
ReplyDeleteThank you, Rachael ❤
DeleteI know something about diuretics myself! ;-) So glad to hear Lily is holding up well!
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