Friday, August 21, 2020

Detox Is Not Much Fun

 Well, I guess yesterday was our free pass day. She had a good night last night, and pretty good this morning. But this afternoon I guess the morphine cut caught up with her. She’s been pretty sleepy, but with a lot of crying bouts in the mix. But as long as I hold her just right and rock/bounce her just right and don’t move my arm or scratch my nose or breathe wrong...then we’re good! For a little while anyway. Trying not to think about what the next week or two will be like if this is just the beginning. But we have to do it. She’s gotta get off these meds so we can get the heck out of Boston. 

From taking with the pain management team today, it sounds like maybe next weekend isn’t going to be our go home date. We’ve gotta get off the morphine, then on to the clonidine. They said maybe 4 or 5 days to get off the clonidine. That’s not what we were expecting. So based on that, it may push is into the next week to get home. We’re so close..but also not. Every time someone tells us it’s a day, two more days, three more days, longer than we thought, it feels like it might as well be two months. And nothing is for certain, which doesn’t help. It all depends on her, on how she handles things, how her body responds. So we’ll see what tomorrow brings. Or maybe just see what the next 5 minutes brings and start with that.


3 comments:

  1. You're such an awesome Daddy!! 😭 Of all the posts this one brought me to tears. Lily is so blessed to have a Daddy who is there while she goes through this, to hold her just right and to rock her just right...💕

    Sorry it's gotten more rough and the goal post keeps moving. It's going to be so sweet when you finally take her home...

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