We arrived back at home on Thursday afternoon. The drive went very well overall. We are so grateful and proud of the girls for how well they did. We stopped just outside Erie Pennsylvania on Wednesday night, and drove home the rest of the way Thursday. Joe has his flight booked to go back to Boston on Tuesday afternoon, and he has a hotel reservation for one week. We're just going to take things one week at a time.
Lily is having a hard time with weaning off the morphine drip. Every time they decrease the dose, even by the smallest amount, she feels the withdrawal. Her symptoms have ranged from fussiness to diarrhea, sweats, gagging, and shakiness. Yesterday, they tried switching her to enteral morphine through her G tube every 4 hours instead of the continuous IV. She did ok at first, but overnight they had to restart the IV form because she was so uncomfortable. they are going to talk to the pain service and the pharmacist today to talk about other ways to wean her off it. She has clonidine to help with the withdrawal, but it doesn't appear to be helping very much.
Good news is that she is off of CPAP and off oxygen now for a couple days! Finally nothing on her cute little face :)
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| On the drive home |
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| Reading buddies |
 Rose is so excited to be home! |
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| I survived my first day back to work. Like my glasses? 😂 |
Oh, our precious Lily. How I pray that God grants wisdom to the pain service and they find a quick w as you to ease Lily off the meds. I long for her to be with you all as a complete family!
ReplyDeleteHope your day back to work went well and you look adorable! Thanks for taking care of others compassionately while your heart is elsewhere.
Sending my heartfelt love
That should read " a quick way to ease"
DeleteUgh the safety glasses at work now!!! Girl. You guys are awesome I’m so glad the drive home went well and you all made it home safe! So happy that Lily is off her CPAP and oxygen!! We will be praying for a successful pain medication wean ASAP! Prayers for Joe as he flys back to Lily and you and the girls transition back home! Let us know if you want chicken ;)
ReplyDeleteSo many cuties on this page my heart could burst! Sorry to hear that about Lily, I'll pray the weaning process would be successful. One week at a time is a good strategy. Love you all!
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