Well, Lily had her second EDG yesterday and the results weren’t exactly thrilling. The upper portion of her stricture had reduced in size to even smaller than it was before they dilated last time. The lower portion was only slightly bigger than it was before the last EGD. They did a steroid injection at the upper portion, to discourage scaring and hopefully help it maintain size, then dilated again.
They also asked that we allow them to include her in a study group where they are performing ultrasound scans of kids with EA so that they can hypothesize if certain kids might have more or less trouble post EA surgery based on thickness of the esophagus walls. We agreed, so now going forward whenever they do these EGDs they’ll also do a ultrasound. It probably won’t do much for us or Lily, but hopefully will be of some benefit to other kids in the future.
Currently, our hopeful discharge date is around September 19th.
You guys are getting so close! I love the picture of you and Lily! she looks like she’s going to fall asleep on you any minute! Also is that a maraca? How fun! Prayers you guys get home
ReplyDeleteASAP!
Thank you Mary ❤ Yes, it's a baby maraca and she loves it! She loves when music therapy comes and plays
DeleteContinuing to pray for you all. Such a long journey. I’m sure the waiting gets even harder the closer you get.
ReplyDeleteThat is so true ❤
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