Maybe This Time It’s Real?

 Hello Friends,

Heidi and I will be traveling back to Boston this week together. Heidi’s parents are coming to town to take care of Rose and Cora for us, so it’ll be a weird change for both of us to be with Lily and our other two be somewhere else.

Lily had her 2nd EGD on Friday and the results were better than the last one. She measured an even 5mm at her stricture, which seems to mean the steroid injection did its job at helping the esophagus respond to the dilation. However she’s having more issues throwing up now. I’m fairly certain it’s related to her getting the steroid injections. She didn’t have any throw up issues before the EGD’s, or even after her first EGD (no steroid injection), but these last two within a day or two of the steroid injection she starts throwing up a lot and then over the next days/week the throwing up wears off. So that’s going to make our taking her home the day after her last EGD a little more tricky.

On that note, more drama in terms of her discharge date. After her 2nd EGD the doctor told Heidi that Lily’s 3rd EGD would be scheduled for 2 to 3 weeks out. Uuuuh...what?! We’ve been told all along that it would be a series of three, each one week apart. Not that we would leave for a couple weeks and then have to come back again right away. After some mild freaking out, calling our hospital social worker, and a few emails, we think we’re back on track for her 3rd one to be this coming Friday. As of last night our bedside nurse told us the schedule still shows her on the schedule for October 2, but we expect that on Monday that will be getting changed. If all goes well we should, hopefully, theoretically, potentially, maybe?!?!? finallly be bringing Lily home next weekend!! 

We’re not looking forward to leaving Rose and Cora, but Rosie loves her time with Oma and Papa so I think she’ll be just fine. And in the mean time, we will try and enjoy a little Heidi and Joe time while we’re there. 

/Joe