Today Joe and I spent most of the day in NICU. Rose even came to visit her baby sisters for a little while. Rose loves to look at them and she has gotten very good at saying their names.
Lily had a feeding tube placed on Tuesday and we are just now starting to give her 1ml feeds. Her stomach is so tiny! (Approximately 3ml total). She is being monitored closely for some cardiac concerns. She has the large VSD and we are waiting for her PDA duct to close to see if there will be a narrowing in her aorta that would need surgery. They're doing frequent heart scans to check on that so that if it does begin to narrow they can hopefully catch it right away to correct it. Hopefully not needed! She was extubated yesterday and is doing well on CPAP. They also did a bronchoscopy on Tuesday that confirmed the esophageal atresia. Unfortunately, it looks like the type (Type A) that will require her to be here for a few months. We have to wait for the two ends of her esophagus to grow closer together before surgery is possible to connect them. She is also going to be getting a PICC today or tomorrow, which is a line that will go in probably through her arm and direct to her heart to allow them to give meds/fluids and nutrition.
Lily had a feeding tube placed on Tuesday and we are just now starting to give her 1ml feeds. Her stomach is so tiny! (Approximately 3ml total). She is being monitored closely for some cardiac concerns. She has the large VSD and we are waiting for her PDA duct to close to see if there will be a narrowing in her aorta that would need surgery. They're doing frequent heart scans to check on that so that if it does begin to narrow they can hopefully catch it right away to correct it. Hopefully not needed! She was extubated yesterday and is doing well on CPAP. They also did a bronchoscopy on Tuesday that confirmed the esophageal atresia. Unfortunately, it looks like the type (Type A) that will require her to be here for a few months. We have to wait for the two ends of her esophagus to grow closer together before surgery is possible to connect them. She is also going to be getting a PICC today or tomorrow, which is a line that will go in probably through her arm and direct to her heart to allow them to give meds/fluids and nutrition.
Cora is doing great. She is off CPAP and doing well without any respiratory assistance. She is receiving breastmilk through an NG tube and will hopefully be starting oral feeds soon. We are hoping she can home in about a week, maybe two. Both girls are receiving phototherapy right now.
Little fighters! 💪👶
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