Moving Day

Big day today for Lil and Cora.

First off the cardiac team did another echocardiogram on Lil this morning. They saw that her PDA has still not closed. They told us that they decided it would be best for them to go in now and close that because with that open she's getting too much blood flow to her lungs and not enough to her body and it can actually slow her growth. The plan is that they'll have a big meeting between the Dr.'s and surgeons on Wednesday, and most likely have surgery for her on Friday. They'll go in and basically put a band on that duct. They'll also check for, and repair if necessary, any restriction in the aorta. We're not sure if they'll also close the VSD (the hole in her heart) at this time or if that will happen later.

Cora is still trucking along. She's now on gravity feeding through her feeding tube and it's been going well. They're working on getting her to regulate her own body temperature and that seems to be going well also. We're not sure if she'll be coming home this weekend or not. It will depend how quickly she picks up eating by mouth, and from what we're seeing so far it seems she might need a little more time.

It's great to see Cora doing so well and to know that we'll be able to bring her home (hopefully) soon, but it almost makes it that much harder to see poor Lily with all her tubes and sensor wires and being so small and frail.

Final report for the day, due to high baby count at the hospital, they decided to move Cora into Lily's room to free up space. It'll be a little tight but it's kind of nice to see them closer together to keep each other company.

We really appreciate all the support and kind words from everyone as we continue on this journey.

-Joe

Cora enjoyed her lunch today

"Turn the lights out, I'm trying to sleep!" 

Lily Ann having her spa day, working on her tan

"Sisters, sisters. There were never such devoted sisters. Never had to have a chaperone, no sir. I'm here to keep my eye on her!"