Ups and Downs

Ups and downs are what people tell us to expect in the NICU.  We've seen that already for both girls.

Up,  both girls are off phototherapy today. They will both get a bilirubin check tomorrow morning to make sure it's still going down.

Down, they attempted a PICC for Lily last night but were unsuccessful.  They will hopefully try again sometime today or tonight.
(Follow up, they did get the PICC in today.)

Up, both girls had their feedings increased. Cora is now getting 46ml of breastmilk through her NG tube every 3hours and Lily is getting 2ml of breastmilk into her G tube every 3 hours (in addition to TPN through her IV)

Down, I (Heidi) am having an emotional day. Cora is doing so well and losing lines and tubes every day. She looks like a small normal baby and it feels real that she could be coming home soon. Lily, however, has such a long road ahead of her, full of lines, tubes, and surgeries. The difference struck me in a powerful way today.

Up,  because Cora has very little attached to her now, we were able to hold Cora in Lily's room next to each other. Joe held Cora, and I held Lily. It's the closest they've been since birth 💜

Lily is still on CPAP.  She has another Echocardiogram tomorrow and I am anxious to talk with the cardiologist about the results.

Thanks again for all the love and support. We feel blessed by all the messages, texts, calls, gifts and meal offers 😊