Never a Dull Moment

Yesterday was another eventful day. Lily's feeding tube came out accidentally. We're not sure how it happened, but it was not secured as much as a normal tube because Lily's stomach is still so small. It's so small that the balloon used to help keep it in place in her stomach could only be inflated with a very small amount of water. Regardless of how it happened, she had to go back to the OR to have a new one placed. Thankfully, we didn't have to wait long. The same surgeon that placed it last week was there and up to talk to us within an hour, and she was off to surgery shortly after that. The surgeon, Dr Elliot (Pennington, but he looks so much like an Elliot that Joe and I like to call him Dr. Elliot) was concerned about gastric contents potentially being spilled from her stomach, but he said it looked great and that he cleaned everything out very well. So hopefully no infection. They also gave some antibiotics during surgery. He secured the tube with 4 sutures instead of 2 this time, so hopefully we won't have to worry about this happening again! Later today they can start using the feeding tube, but they will bump her feedings down to 5ml at first and start working back up. She had been up to 9ml.

Lily is still on a ventilator right now, but she's starting to wake up and will most likely come off the vent sometime this morning or afternoon. Joe and the nurse kept a close eye on her overnight, and she seems pretty comfortable. It's possible that this will delay her heart surgery. We were on board for Monday surgery as all of her labs have come back negative for infection, but Dr. Elliot is worried about her having surgery that requires a blood thinner (heparin) so soon after having this surgery. He is going to talk to Dr. Haw (heart surgeon) on Sunday to discuss it, so we should know Sunday whether or not she will go to surgery on Monday for her heart.

Cora had a great night. She drank half of her feeding from a bottle this morning! The other half then goes through her NG feeding tube. She gained weight yesterday again :)

I was able to hold both girls at the same time for the first time yesterday. That was special.

Lily before feeding tube came out 

Cora